Look Both Ways: Advice for Before you Visit a Specialist

I am always happy to give advice to friends and family, particularly on navigating the health care system.  While being underinsured is obviously a problem, having great insurance comes with its own particular challenges.

It would seem liberating and well, just better, to not have a “gatekeeper” policing your use of specialists and expensive medications.  Sometimes, indeed it is, but it depends.  And sometimes, seeing a specialist is the obvious route.  Ideally you are under the care of a primary care provider who will take the time to look at your case holistically and advise you about when to consult a specialist.  But sadly, the system is set up to not give the provider the luxury of time to do this easily in many cases, and a referral to a specialist is sometimes a way of passing the buck, even if that is not the intention.

Okay, I’m going to say it.  Specialists sometimes have tunnel vision, and this is understandable.   A provider sent someone to see them, indicating at least that they suspect the problem is in the specialist’s particular field.  But medicine is at times as much art as science, I’m afraid, and that is not always the case.  It could be more like a best guess, or even a scattershot approach –  fainting spells: neuro or cardio? Let’s do both. 

And while in the end, the specialist may report that the problem is not in his or her specialty —  your heart is fine, or your lungs, or your kidneys —   usually there are a lot of expensive and sometimes invasive tests, involved in coming to this conclusion.

I’d like to spare you this. If you have a new subtle symptom, by all means make note of it, when it began, what makes it worse or better, and simply observe for 2 weeks.  Note – and this should be common sense — fainting, chest pain, signs of a stroke like facial drooping or slurring words, severe pain of any kind, prolonged blurry vision, blood in urine or stool are not subtle and you should see someone right away.  Basically, if the symptom scares you, see someone right away.  But if it’s just a newly observed sensation, you may want to wait a little to see if it goes away on its own.  I’ll give you an example of what I mean.  When I was in nursing school, I developed, or should I say noticed, many new symptoms.   My leg throbbed at odd times.  I felt, if I really dug in, some weird bumps under my skin in certain places.  My knees sometimes made a creaking sound.  If I moved just a certain way, kind of like a cha-cha step, I got their strange pain in my hip for a moment.  My doctor would dutifully take note but also wisely took a wait and see approach.  And the next time I saw her, she’d ask about it and more often than not, I’d forgotten all about it.

There is a reason why the majority of health care providers do not utilize as much health care as non-providers.  Sure, they have more knowledge of the human body, but it’s more than that.  We know that every test we order has to be followed.  And the more tests you order, the more abnormal results you will find, that you may not have even been looking for, have nothing to do with the original problem and may have no effect on the patient’s future health.   But now you have to track every one of these down.  You might never find the answer – art vs science, remember? — but a lot of hours have been spent in its pursuit.  While many people want to have as many tests and imaging studies as possible as an assurance that “everything is okay,”  too often they don’t get this reassurance and in fact, might get more to worry about, whether justified or not.  It’s the reason I am leery of those full body scans that are marketed to the public, but that’s another issue. For now, the message is, don’t run blindly from one specialist to another without “looking both ways.”  Form a relationship with your primary care provider and make those decisions together.    

Healthy Thoughts: What This Blog is All About

There are a lot of health-related blogs out there, so what makes this one different?  Imagine if you will that you have a close relative or friend who is a nurse practitioner.  You would probably feel free to ask her or him anything about your current state of health as a matter of course. Off the cuff, spur of the moment,  things you might not ask your doctor because of embarrassment or time constraints or fear of seeming silly.

My patients often tell me nurse practitioners are easy to talk to because they listen. And I do make it a point to give my full attention when a patient is describing symptoms or as we say in the biz – complaints. That word may have a negative connotation outside of health care but it’s a simple way to describe what brought you in to see a health care provider.

Even nurse practitioners have restricted time-slots (alas!) so there are questions that you might not get to ask during an office visit. Unless you have a relative or friend who’s an NP. Then you can send emails to that person with the subject line “eye” or “kidney” or “weird symptoms.” And you will get answers.

Now before you get the wrong idea – this blog is not going to be a forum for your specific health questions.  Rather, I will discuss all the kinds of questions patients, relatives, friends, and yes, even strangers, have asked me about their health. Chances are, some of these topics will speak to you personally.  I will share with you my health practices — what I do to stay healthy, what I advise my family to do, as well as share my thoughts about health care today, including how to utilize the system to optimize your health. My goal is to improve health through knowledge, from a nurse practitioner’s perspective.

But that is not my only motivation.  The URL for the website is www.mynursepractitionerwrites.com because, well. I was a writer before I was a nurse practitioner.  And sometimes, certain patient encounters resonate with me, becoming almost lyrical in the truths they reveal about both the patient and provider. It happens when the humanity of each person comes through despite the trappings, time constraints and mechanisms of modern-day healthcare.  It’s the reason  I renamed my site, “Tales From the Clinic.”  Some of the content is clinical, for sure, and some of it reflects the meaning I find in patient stories.

Please take a look at the menu bar to find content that interests you, and if you find it helpful, or just fun to read, please subscribe to my blog at the bottom of the menu drop-down. Thank you.

© 2016-2020 Eileen Healy Carlsen, FNP-BC (board certified nurse practitioner in Family Health)

A Bad Diagnosis

Sometimes it’s in an email, with a worrying subject line. I’ve found the most worrying subject line is just someone’s name. Other times it’s a phone call, the seriousness of which is immediately revealed in the tone of the caller’s voice. There are times when it just comes up in a random run-in with a friend or acquaintance. A bad diagnosis.

It doesn’t have to be life or death but it has consumed this person’s every waking thought. And of course, they’ve been on the internet, reading everything from “survivor” blogs, alternative health sites and mainstream sites such as WebMd.com and Mayoclinic.com. It’s made them crazy, confused and panicky.

Many times, off the top of my head, I can’t give them an immediate answer. It’s out of my field of expertise.  Or I just want to make sure I am aware of the latest developments in that particular field. I tell them to take a deep breath, that they have some time to make a decision, no matter how serious the issue.  Yes, they should get a second opinion, and they should check with their insurance company about how to go about that.

If the diagnosis is cancer, I tell them to check if they’ll be able to go to the top cancer center in their area (and I tell them the name of the center) for treatment or at least for that second opinion.

No matter the diagnosis, a lot of research needs to be done before that second-opinion visit. I am happy to do this for them but for many people, knowledge bestows a measure of control. So usually we do the research together. Not only is it vital to understand the diagnosis, but being as well-informed as possible will maximize the benefits of that second-opinion visit. They will know where the gray areas lie (and there are always gray areas), the latest promising but perhaps controversial treatments being researched, and the ramifications of not treating. The last is always a very important question to ask – what if I decide to do nothing?

In terms of research, I recommend http://www.webmd.com and http://www.mayoclinic.org/ for very preliminary understanding. Beyond that, it’s best to go to the source most health care providers use, including myself. It’s non-biased and has the very latest research. In the past, it was extremely expensive for an individual. Providers have access through their electronic medical record software or as a standalone through a group practice subscription. There is a free basic patient information option and you can start there, but for the kind of research I recommend, you will need to subscribe. Luckily, now you can subscribe for a week for $20.00 or a month for $53. http://www.uptodate.com/home/uptodate-subscription-options-patients  (Note: I currently have no affiliation or financial dealings with any of the websites mentioned.)

Then it’s always a waiting game, and that’s the worst part. For the appointment, for new tests, for test results. I don’t make decisions for anyone but I hope my input helps them make the best decisions possible with the current state of knowledge. And that’s really all anyone can do.