Comfort Zones Part 1: The Night Shift

When I was in my last year of NP school I volunteered at a weeklong sleepaway camp for kids living with HIV. This was in the days when “living with”  was a euphemism for “dying from.” What was I worried about going in?  Not contracting HIV.  Not even seeing kids who were very sick.  I was concerned about the night shift.

Having gone straight through nursing school to graduate school, I hadn’t worked as an RN. Many new RNs start out on the night shift. Somebody has to do it and it’s viewed as paying your dues.  In the camp program I was in, everyone was assigned one night shift, and we were partnered up so noone was alone.

Of course the night shift per se should have been the least of my worries. We were taking care of some very sick kids with j-pegs, and kangaroo feedings and weak lungs susceptible to Pneumocystis pneumonia. My nursing experience was all academic at this point. I could ace a test, but maybe not save a life.

But what I was worried about was staying awake.

In this particular program, there were mostly inner-city kids. HIV knows no demographics – anyone can contract it. But these kids were all born with it. Their only risky behavior was being born. Many of their parents had drug problems at some point. Many of the children were orphans and many whose parents were still living, were in foster care.  This I knew going in. What I did not expect was to see how happy the kids were, getting off the bus. All seemed to be excited to have a week of camp, whether they were six or 16.

The facilities were not impressive, but there was a lake for swimming, basketball courts, and plenty of room to run around. The kids stayed in cabins with a counselor, and while not fancy, accommodations were adequate. The counselors told me the kids were not used to the lack of traffic sounds and were at times frightened of the sounds of the natural world. We were not technically in the country, more like an ex-urb, but to these kids, it was very remote.

We nurses spent our shifts keeping everything stocked, treating bug bites and minor scratches, and of course, giving meds. The kids were all on a lot of meds. There were a number of ICU nurses there who easily took care of the parenteral feedings and med administration. The rest of us took care of the oral meds. The kids were stoic, having grown up taking lots of nasty-tasting stuff and swallowing large pills. They just wanted to get it over with, anxious to get back to the fun.

Our team was led by an ER doc who had done this a number of years. His mantra was to just keep all the kids well enough to continue camp. Cellulitis? Medicate and cover up to avoid transmission. Toothache? He just injected procaine as often as needed so the little boy could enjoy camp. I felt so sad that he could get this kind of a toothache at this age, but of course, he was one of the ones in and out of homeless centers without regular dental care.

My scheduled night shift was in the middle of the week. I polled the experienced nurses to see if they recommended napping that day in the afternoon. No consensus.  I tried, but it was very noisy and I wasn’t able to sleep.   Finally it was time for my 7 o’clock shift. I had coffee with my dinner but was already feeling tired. The other nurse had just gotten off the night shift at her job in a small community hospital a few months ago so she was an old hand.  We chatted. Listened to music.  Played tic tack toe.  This was in the days before smart phones.

Around 2 am we heard the crunch of footsteps on the graveled path leading to the door of our makeshift clinic. The screen door slammed as one of the male counselors came in, carrying a boy who looked about six, piggy-back style. He informed us the boy had fallen out of his bunk bed. We both knew Victor (not his real name). He was kind of like the camp mascot. He always seemed to be having fun and giggling. He had skin the color of tea with a drop of milk, blondish, nappy hair, and the sweetish smile imaginable. He melted hearts wherever he went and that was before you heard his story. Both his parents were addicts. His father had died of HIV when Victor was two. His mother had been living with the disease until last year, when she relapsed and died of a heroin overdose. Now he was in the foster care system and had had some bad placements.  You would never know it from interacting with him.

Victor looked like he had been crying but was smiling and cooperative as I examined him. His counselor told us he had not lost consciousness. He had woken from a bad dream and had been in the act of trying to climb out of bed when he fell.  Luckily, there had been s pile of rolled-up sleeping bags on the floor which had broken his fall. He had not hit his head and now he denied any pain. Nevertheless, I gave him a thorough neuro exam, checked his joints for swelling, his abdomen for possible internal injuries. Gave a good listen to his heart and lungs. His vital signs were all normal. We instructed the counselor on what warning signs to look for and they got ready to go, with Victor fully expecting — and getting — another piggy-back ride.  The other nurse told them to “hold on” as she rustled around in the bag of stuffed animals we had and gave him a large plush snake to take back to the cabin.  He was delighted.

The remaining time of our shift went rather quickly and then it was over. I had survived the night shift. My cohort and I were glad to see the day shift, chatted a bit and went to raid the camp kitchen before heading for a long nap. We had the whole day off.

Thankfully, there were no major calamities that week, but as can probably be expected, interacting with the campers was bittersweet.  Whenever I saw Victor, he was clutching the stuffed snake, seemingly none the worse for wear from his early morning fall.

On our last night, a talent show was scheduled and the kids were very into this, even taking time from swimming and games to practice. The karaoke machine was enormously popular.  The campers all seemed to know the latest music and could lip sync songs and dance like the original artists. It was impressive but heartbreaking when one of our older campers, a cachectic 16 year old girl on oxygen, gave an amazing rendition of a Selena song. The kids did enjoy the little number we nurses put together, dancing (after a fashion) and swinging our stethoscopes like feathered boas.

The next morning was a rush of packing up supplies. We had been told repeatedly at orientation not to give gifts to the kids to avoid favoritism and hurt feelings, but some nurses drove into town on their time off and did just that. I was assigned to gather up the toys to pack away for the next camp session. I went from cabin to cabin driving a golf cart and collected them. The kids had been told to deposit them in a box in their cabin. My last stop turned out to be Victor’s cabin.  As I went to drag the box out, I spotted the plush snake’s nose peeking out from beneath a bare pillow. I reached for it and Victor came running in and hugged me. “Please nurse, can’t I keep him?” he asked.

And here’s what haunts me to this day.  I said no. I explained we had to have all the toys back for the new campers next week.  Victor didn’t cry or make a fuss.  He just looked sad and nodded that he understood.  This was what I should have been worrying about instead of the night shift: how I was going to feel about those children. Was my heart already hardening out of self-preservation? I had been relying on the rules to get me through this week, a week that took me way out of my comfort zone.  Victor was dying, all the kids at that camp were.  Why was I depriving him of remaining in his comfort zone, for just a little while longer?

#patientstories, #comfortzone, #HIVcamp

Teeth Don’t Lie, or If It Walks Like a Duck…

It was at the end of the day.  Encounters like this one always happen at the end of the day. You’re tired, your staff is tired, and you’re behind schedule. Welcome to any day of the week at 4pm at a community health center.

I had scanned my schedule as I finished my note on the last patient.  A new patient visit popped up.  A women age 43 with an unfamiliar (for this particular clinic), Nordic-sounding name.  Okay, I thought, maybe someone visiting here and not wanting to go to the emergency room. This was before there was an Urgent Care Center on almost every block. And it was always very difficult to get into a private practice for what is likely to be a one-time visit. The complaint written on the schedule was “teeth falling out.”

Oh.  Or uh-oh. Or at least, hmmmmm.  When I think of missing dentition in a relatively young person, I think homelessness/mental illness.  Or meth.  I dutifully checked Uptodate (www.uptodate.com) to see if I was missing something, like some rare auto-immune disorder. I wasn’t.

Sooo. I walked into the exam room ready for anything.  I encountered a tall, blond women, gowned and sitting on the exam table, shuffling a lot of papers.  Never a good sign. The part about the papers, I mean. I smiled and introduced myself and I asked why she was there.  Sometimes, with our bilingual front desk staff, things can get lost in translation.  For many of the staff, English is their second language and certain physical complaints can be hard to translate.  It was a hopeful thought and I decided to stick with it until I heard otherwise.

“I was at the emergency room all night,” she said, as she thrust the papers towards me.  She had a faint, Germanic-sounding accent.  In fact, she slightly resembled the model Heidi Klum. “They said I had vasculitis.”  She moved the hem of her exam robe to expose a reddish rash going down her thigh.

“Well, what did they give you?” I asked.

“It’s all there,” she responded with a touch of impatience. She tossed her blond hair, a habit from youth, I guessed, but her hair was straggly and dull,  rendering the movement ineffective.

I explained that these reports often fail to contain the information that will be most helpful to me: a diagnosis, test results and medication prescribed.  Often it is page after page of instructions and disclaimers with the important stuff hopelessly buried within, if present at all.

“They gave me this,” she said as she handed me a prescription bottle from her purse. “But I know it’s a steroid and I don’t want to take it.”

“Okay,” I said. “Have you had a bad reaction to steroids before?” It was relatively common to get palpitations, anxiety or insomnia while taking this kind of medication.

“No, it’s not that.  I just prefer to do things naturally.  I don’t like medication.  And besides, the people at the ER didn’t help me with my main problem.”

“Which is?”

“My teeth are starting to fall out.”

Here we go, I thought. “Let’s start at the beginning, is that alright? I just want get your basic medical history. I positioned the computer so I could enter the information while we still talked face-to-face.

The history she gave me was totally unremarkable.  According to her she was the picture of perfect health. She took no medication.  Her teeth just started to become loose about 4 weeks ago.  She made it a point to tell me she lived, not in the town the clinic was in, but one town over – a very upscale suburb. She also mentioned her two children who were excelling at the high school. One had just gotten into an Ivy League college, in fact.

She dug in her purse and I thought it was for her phone to show me a photo but she took out a laminated newspaper clipping with well-worm edges.  “That’s me,” she said proudly. “I was a model in my country. “

“Very nice,” I murmured. It was indeed her, about 20 years ago, and she’d been beautiful. She was handsome, as they say, even now. “Let’s get started on the exam.” I suggested.

I couldn’t really tell what the rash was, but vasculitis seemed a long shot. I thought it was a simple, uninfected contact dermatitis, which could be treated with an OTC steroid cream.  But now I went on to the part I was dreading, the oral exam.  She complained of no pain when I palpated her jaw and cheekbones. She had no swelling or bruising. I did notice her complexion was a little rough and there was one unusual scab right in front of her ear.  When she opened her mouth, it was clear she was missing a few of her back bottom molars, and when I shined a light inside, the top ones too. She wiggled a canine tooth for me like an excited kindergartener. The disconcerting sight gave me goosebumps.

“See, nurse, this is what I’m talking about.” I nodded and completed the rest of the exam. Other than her skin and teeth, nothing seemed amiss.

I excused myself and conferred with a colleague, who agreed that I had to do a tox screen.

“What’s weird is that she’s not asking for anything, no requests for opioids.” I mused.

When I went back in the exam room, I told her I was stumped. I recommended we start with some basic blood work.  I told her we needed to do a urine test as well, to test for drugs.

“But I told you, I don’t even like medication. I certainly don’t take drugs.” She made a point of holding my gaze directly, her clear blue eyes telegraphing her sincerity.

“I understand,” I responded, “But please humor me. Use of methamphetamine is a major cause of teeth falling out.  I would not be doing my job if we didn’t rule that out first “  I also wondered if they had done that at the ER.  If so, I was sure that particular tidbit would not be included in the papers she handed me.

“I will call you with the results,” I told her.

“Don’t I need a follow-up appointment?” she asked, which kind of surprised me.

“Well, you can certainly make one if you wish, but until we get the results, I’m not sure how productive it will be. We may need to refer you to a specialist.”

I went on to the next patient and my medical assistant went in to draw blood and hand her a urine specimen cup.

My last patient was an 8 year old with strep throat. Easy peasy and she was a sweetheart to boot. I was about to sit down at my desk to finish charting when my medical assistant informed me my prior patient was still here because she couldn’t pee.  She was drinking water when I entered the room. My patience was wearing a little thin. “Look,” I said, “We really need to do this test. We can’t continue to take care of you and get to the bottom of this if we don’t.” She regarded me coldly as she took the last swig from the bottle.

“Very well,” she retorted.

By the time I left that day, I had no idea if she submitted the specimen, but it turned out she had.  The next morning the urine test was back.  Positive for methamphetamines.  I called several times, leaving discreet messages asking her to call me but she didn’t.

They informed me at the front desk that she had indeed made another appointment.  She told them this time she wanted to see a doctor, “not a nurse!”, and she wanted a male doctor.  I doubted that she’d show.

I was wrong. I guess her charms were lost on me. Because the doctor, even though I had told him about the tox screen, was driven to find out what was wrong with “this poor women”.  He said she told him that she was taking her child’s Ritalin to concentrate and that’s why her tox screen was positive.

“But I asked her about medication.  She denied taking any.”

“Well, I guess she didn’t feel comfortable with you,” my colleague suggested. And  I guessed  that old modeling photo still had a certain juju.

“And she hasn’t requested any opioids?” I could not help asking.

“Oh, no,”  he responded. “She’s very anti-drug.”

It made me wonder why she came to the clinic in the first place.  Was it for the attention? Was she mentally ill?  A borderline personality disorder, maybe?  But it wasn’t my problem anymore, and there were always more patients to see.

I did ask my colleague a few months later what progress he had made in her case.

“Oh, she just stopped coming.” He admitted sheepishly, and a little regretfully.

“And her teeth?”

“Kept falling out. I referred her to a dentist but not sure if she went. She was going through a divorce and there were insurance problems and money was tight.”

I began to question myself. Maybe I was getting too hard. Could it have been really advanced periodontal disease?  Was it all from stress?  But how and why did she know the exact thing to say that would explain away her positive urine screen?

About six months later, another colleague drew my attention to an article in the local paper. “Isn’t this that women with the teeth?” It was. Her bone structure prevailed even in the mug shot.  Heidi Klum on a very bad day.  She was found sleeping in her car in that exclusive suburb.  Also found was her stash of methamphetamine.  It was sad.  I wondered if the children she told me about were real, and how they were faring in the midst of all this. I asked one of our social workers to look into it.

It continued to be a mystery to me.  Was that first visit a cry for help?  Or did she think stopping her teeth from falling out would prevent her life from falling apart?

©2017 by Eileen Healy Carlsen. All rights reserved.

Healthy Thoughts: What This Blog is All About

There are a lot of health-related blogs out there, so what makes this one different?  Imagine if you will that you have a close relative or friend who is a nurse practitioner.  You would probably feel free to ask her or him anything about your current state of health as a matter of course. Off the cuff, spur of the moment,  things you might not ask your doctor because of embarrassment or time constraints or fear of seeming silly.

My patients often tell me nurse practitioners are easy to talk to because they listen. And I do make it a point to give my full attention when a patient is describing symptoms or as we say in the biz – complaints. That word may have a negative connotation outside of health care but it’s a simple way to describe what brought you in to see a health care provider.

Even nurse practitioners have restricted time-slots (alas!) so there are questions that you might not get to ask during an office visit. Unless you have a relative or friend who’s an NP. Then you can send emails to that person with the subject line “eye” or “kidney” or “weird symptoms.” And you will get answers.

Now before you get the wrong idea – this blog is not going to be a forum for your specific health questions.  Rather, I will discuss all the kinds of questions patients, relatives, friends, and yes, even strangers, have asked me about their health. Chances are, some of these topics will speak to you personally.  I will share with you my health practices — what I do to stay healthy, what I advise my family to do, as well as share my thoughts about health care today, including how to utilize the system to optimize your health. My goal is to improve health through knowledge, from a nurse practitioner’s perspective.

But that is not my only motivation.  The URL for the website is www.mynursepractitionerwrites.com because, well. I was a writer before I was a nurse practitioner.  And sometimes, certain patient encounters resonate with me, becoming almost lyrical in the truths they reveal about both the patient and provider. It happens when the humanity of each person comes through despite the trappings, time constraints and mechanisms of modern-day healthcare.  It’s the reason  I renamed my site, “Tales From the Clinic.”  Some of the content is clinical, for sure, and some of it reflects the meaning I find in patient stories.

Please take a look at the menu bar to find content that interests you, and if you find it helpful, or just fun to read, please subscribe to my blog at the bottom of the menu drop-down. Thank you.

© 2016-2020 Eileen Healy Carlsen, FNP-BC (board certified nurse practitioner in Family Health)